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Minnesota CFF Cares Event 1 - CFF EDU panel #1

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VOLUNTEER EVENTS
CFF EDU
THURSDAY, SEPTEMBER 30, 2021 AT 12:00 PM CT
A WEBINAR SERIES PROVIDING INFORMATION ABOUT CYSTIC FIBROSIS, THE CF FOUNDATION, AND AVAILABLE RESOURCES

This new series discusses different topics related to cystic fibrosis. You'll hear directly from people with a wide range of connections to cystic fibrosis - including local community members living with CF, clinicians, Foundation staff, and advocates - about their experiences and journeys, while getting information and resources available to all members of the CF community. These sessions are for everyone - whether you've just received a diagnosis, know someone with CF and want to learn more, or have been part of the CF community for years.

Session 1: “What I Wish I Knew About Cystic Fibrosis”  - March 17th 2021
This session will host a discussion from two people living with cystic fibrosis and a mother of a daughter with CF about 'things they wish they knew' when they received their diagnosis. Hear from a local care center team about the resources, information, and next steps they share after a new diagnosis.

Check out the recording here: https://youtu.be/eZplYngN7UE

Session 2: "CF 101" - June 14th 2021
Navigating a new cystic fibrosis diagnosis is challenging and can feel isolating. On June 14th, professionals in the medical field will share an overview of CF and next steps. This is an excellent session for families with new diagnoses or people who are interested in learning more about cystic fibrosis. Join us for a conversation with Brooke Moore, MD, a pediatric pulmonologist at Children's Minnseota, and Christina Bond, LMSW, a social worker at the Heart & Lung clinic at CHI St. Alexius Health's Cystic Fibrosis Center in Bismarck. This session will be moderated by Jackie Gasperlin, PA, an individual with CF.

Check out the recording here: https://www.youtube.com/watch?v=3afEUJubRZU

Session 3: "How to Advocate" - September 30th 2021
Are you passionate about helping all people living with cystic fibrosis? Do you enjoy making a difference in your community? Then advocating is right for you! Volunteer advocates drive our legislative and regulatory agenda forward at every level of government. In our third session of CFF EDU: How to be an Advocate, you’ll hear from three community members on how they advocate for all people living with CF at their local, state, and national levels. Advocating is an essential role of our community because it ensures that the CF community receives support from federal and state decision makers across the country. The CF Foundation provides many advocacy opportunities - from signing a petition to presenting in front of representatives - and everyone can find the method that works best for them. Join us Thursday, September 30 to hear from Chris Brungardt, Ashleigh Tharp, and Pam Mertz as they share their stories and different advocacy methods. Together, we are improving access to high-quality, specialized care so people with CF can live longer, healthier lives.



Session 4: "Foundation Resources"
contact Information
Email: minn@cff.org
Phone: 651-631-3290

Event Support Specialist
Channing Pick

Email: cpick@cff.org

 
event location
 
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