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Minnesota CFF Cares Event 1 - CFF EDU panel #1

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VOLUNTEER EVENTS
CFF EDU
MONDAY, JUNE 14, 2021 AT 12:00 PM CT
A WEBINAR SERIES PROVIDING INFORMATION ABOUT CYSTIC FIBROSIS, THE CF FOUNDATION, AND AVAILABLE RESOURCES

This new series discusses different topics related to cystic fibrosis. You'll hear directly from people with a wide range of connections to cystic fibrosis - including local community members living with CF, clinicians, Foundation staff, and advocates - about their experiences and journeys, while getting information and resources available to all members of the CF community. These sessions are for everyone - whether you've just received a diagnosis, know someone with CF and want to learn more, or have been part of the CF community for years.

Session 1: “What I Wish I Knew About Cystic Fibrosis”  - March 17th 2021
This session will host a discussion from two people living with cystic fibrosis and a mother of a daughter with CF about 'things they wish they knew' when they received their diagnosis. Hear from a local care center team about the resources, information, and next steps they share after a new diagnosis.

Check out the recording here: https://youtu.be/eZplYngN7UE

Session 2: "CF 101"
Navigating a new cystic fibrosis diagnosis is challenging and can feel isolating. On June 14th, professionals in the medical field will share an overview of CF and next steps. This is an excellent session for families with new diagnoses or people who are interested in learning more about cystic fibrosis. Join us for a conversation with Brooke Moore, MD, a pediatric pulmonologist at Children's Minnseota, and Christina Bond, LMSW, a social worker at the Heart & Lung clinic at CHI St. Alexius Health's Cystic Fibrosis Center in Bismarck. This session will be moderated by Jackie Gasperlin, PA, an individual with CF.



Session 3: "How to Advocate"

Session 4: "Foundation Resources"
contact Information
Email: minn@cff.org
Phone: 651-631-3290

Event Support Specialist
Channing Pick

Email: cpick@cff.org

 
event location
 
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